3.27.2015

Hard Days

So when I started my blog, I promised myself to share the good and the hard of my disease in order for it to be therapeutic for me and in order to raise awareness and be an advoacate.


Sometimes you have to take the good and the bad in life and with my HD and this week has been really hard for me. I'm dealing with hard realizations that most likely I am going to be alone in this journey. I have realized that I won't be able to get married and have a family as everyone around me is. That's a harsh reality for me a 24 year old to deal with becuase that's all I wanted in life and the HD is taking that from me.

Another hard thing for me to also deal with is that there are people who I believed would be beyond supportive to me have not been seeing me, or messaging me to see how I am. I feel as if some people deal by pushing me away when I need them to pull me in. I just feel extremely alone and lonely lately.

I do want to say there are people who are busy in their own lives but constantly making time for me and we are closer now that I am sick. I wanted to thank these people specifically- My entire Dads side, the Freniers,  my cousin Chelsie, my best friends Jenny and Emily, my Kansas family,  my sister friends, and of course my sister Elizabeth, her boyfriend Alex, my mom and Step dad Ken. I love all of you and appreciate what you do for me. You got me through this crazy winter!!



There are days when I feel so lonely here and deeply miss my friends that I say I wish I still lived in Kansas. I feel like all of my friends here have pulled away lately when I really need them. 


Let's just say I am feeling hurt by a lot of people in my life. I understand Its hard for them to see me but it's ten times harder for me to do this and fight this alone.  


I have had a lot of long talks with my mom  and sister about this lately and my mom said blog about It so I am so grateful I did. It got my thoughts and frustrations out.


Thanks for reading
-Alex


3.17.2015

Why I have the best sister ever and Pat Green Concert

On Valentine's Day I was supposed to stay at my sisters for the night and hang out with her and her boyfriend but because of all the snow I could not go. So she came for the day and hung out with me and we went to lunch and shopping and she went home before the snow started. As a Valentine's gift she got me tickets to the Pat Green concert at the House of Blues in Boston!  I was so excited to go I am in love with country and concerts from the 15 years in Kansas!

So we went to Pat Green on a Sunday night, got pad Thai first and I slept at her house after. It was at a small venue and we were so close to him. We had so much fun and we would just look at eachother and smile. I truly was taking in each moment. He was amazing and put on a great show! 

I was really happy that my sister had so much fun becuase my parents and her do so much for me I love when they let loose and have a little fun! ��♥️ 





I truly have the best sister ever- she has my whole heart for moving her whole life and her boyfriend  from Chicago to here and spending so much time with me. I am truly happy when I get to see her. I know what she had to do was not easy but she doesn't make it look that way.

I'm happy that I am happy. Having HD has completely turned my life around. There are the hard things such as being alone, not having kids, not teaching Autistic children any more. But then there are the great things such as  living in the moment,  going on more vacations (blog about Italy trip to come!!), being fearless And passionate, having Liz live here, having the love and support of family and friends, being in the globe about my HD journey and loving people deeper! 

Although I'm not teaching my students anymore I am teaching the world about HD. This could not make me happier. I love nothing more than sharing my story with the world!
I would be no were without my readers so thank you, thank you, thank you!!


Alexandra



3.09.2015

My HD hitting me all physically and I wouldn't change my case for anything

Yesterday I accidentally drank what I thought was decaf coffee and it actually had caffeine In it which is not good for my HD symptoms. I had awful movements and it was hard for me to walk. Last night was really hard physically for me.

I said to my sister who was with me, I'm glad I am not like this all the time, and I'm thankful we figure out it was caffeine last summer, but eventually I will be like this all the time. She said I don't think you will- I don't remember Dad ever moving as much as you when you have caffeine ever. I then said to her he was angry and depressed-I'm not and every single case is different.

Extreme depression and anger are actual symptoms of HD. A lot of people believe that they are side effects of it- that's not true.

I have no idea why I'm not depressed or angry but I can honestly say  I am not. I am happier than ever because I am living in the moment more, doing things I have never done, being fearless, and blogging about all the good in my life, and there's a lot of good. I would not change my case hitting me all physical for the world. I'm ever grateful for my HD not hitting me emotionally- someone must be looking out for me!

 As always thanks for reading I love nothing more than sharing my story,
Alexandra Boothby


2.25.2015

Stella and Dot




My mom and I started selling Stella and  dot. Stella and Dot sells 
Tjewelry, scarves, bags, and accessories. I'm in love with Stella and Dot so far- it's an amazing company and amazing product. I'm a S&D stylist! 

I'm having so much fun selling Stella and dot! I was going to my aunt and uncles office once a week but have still been bored not working. I was feeling restless and worthless and needed something to occupy my time. By being a stylist I'm really busy.. I feel as if I have a purpose again! It has been really great for me. 


Shop my jTrunk show until March 8th  and then shop my online boutique

Have styling questions? Or want to send me a picture of your out fit and let me pick the perfect accessory? email me



If you want to have an online or at home trunk show you can earn these rewards! 

Here are 8 amazing reasons to shop S&D 


Alexandra