11.24.2014

My favorite family tradition-Sulmonte Family Sunday Breakfast


TGood morning readers- I hope all is well with you!

Today I'm going to share my favorite family tradition - for as long as I can remember Sunday morning means that all my huge crazy family comes to my Nana and Papas for breakfast. When I was growing up I remember playing with my cousins and that Sunday was my favorite day for that reason. We had the very best grandparents and loved nothing more than coming to see them. When I was about 10 my nana and papa moved to Florida and the tradition contiued in the Summer and around Thanksgiving and Christmas when they were home.

Today the tradition still stands and all my cousins are now bringing their spouses and kids to see their grandparents. We have a crazy number of people and I love nothing more.




This past Sunday was our first breakfast since my Nana and Papa had been home and it was amazing to see every one back together again. I had a lot of peaceful and perfect moments!

My family is my biggest supporters, encouragers, and advocates of my HD.  I love them for it!

Thanks for reading,
Alexandra 

11.16.2014

My weekly sister tradition

I have  been having a lot of sister time ever since my sister Elizabeth moved back here in June. It couldn't make me happier! She will come home for a weekend or I will go there. We started a weekly tradition in August and I have been going to see her every Wednesday  since then :) She lives in a quaint and beautiful neighborhood in Boston and there are many peaceful and perfect moments when I am there! Some of the things we have done together when I have gone is shopping, walks, drinks on the water, and dinner!!







I love love our tradition and that she lives so close and we can do it.  I look forward to Wednesday's and all of our time together!   I truly have the best sister and best friend ever. Her smile and personality light up a room-she is truly beautiful inside and out! she takes all the pressure off my mom and balances it out between them by being here- and she knows that- that's why she's here :) I am happy when I am with my sister and will never be able to thank her for moving her boyfriend and life from Chicago to here! I love love her! She was my first best friend. There is no question in my mind whether or not she truly gets and understands my HD struggle. She is my advocate and one of my biggest supporters! It was the push from her that started my blog, and she supported my Boston Globe article. This drive of mine to be an advocate of HD is all pushed from her.


Happy tears this morning.

As always thanks for reading and thanks to my sister,
Alex 

11.10.2014

Imperfect

One thing that my HD journey has taught me is that people will love you even if you aren't perfect. They will still love me imperfections and all. They knew and loved me before the HD which means they will still love me despite my HD. It was a long road to get there. In the beginning of my diagnosis, I struggled with feeling different than every one around me and I felt embarrassed.  

Now I realize that no one is the same, and everyone must feel different at some point. I am no longer embarrassed, and feel more confident in myself each day. I have realized that people love me before HD and people still love me after. I have learned to embrace my imperfections. 

I am encouraging you to embrace your imperfections. What is some thing you feel different about- embrace it!!


As always thanks for reading- this space is my safe haven,

Alexandra 

11.06.2014

Fiercely miss my fly over state, Kansas, but am right where I need to b

I have been deeply missing my friends and Kansas lately. I have been listening to old songs and looking at old pictures that remind me of so many great memories in Kansas. I feel blessed to have loved Kansas so much that I fiercely miss it. I miss my favorite country road and country music up windows down kinda days. I miss OS, KU, and Kappa Delta. I miss arbor creek pool days and my house. I miss everything about my friends that I consider family. I miss Royals tailgates and everything about a Kansas summer.

 But with everything going on with my HD, at the end of the day I need all my family-at the end of the day I am right where I need to be. I miss Kansas but Boston has my family and my heart-It's my home :) 

If I was not here I would not have my beach and cottage days. I would  not have this beautiful Fall in New England or the opportunity to reconnect with my Dads family. I especially would not have my family, who are my support system, my everything,  my best friends. 


So I will alway always miss Kansas but Boston is my home. 


Today I am going to my cousin Melissa's to spend time with her and my niece and nephews one thing I could not do if I lived in Kansas.

Thanks for reading,
Alexandra