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Thursday, September 11, 2014

Sulmonte and Frenier

Hello readers,

Happy Friday!
I hope you enjoy your weekend!

A long time ago my Papa built an accounting firm. When he retired he passed the firm on to my Aunt and Uncle. It's a family business. The only people who work there is my cousin Daniel, my aunt, uncle, my moms cousin, and my stepdad. And when I was younger, my Nana used to clean the office and I would go and color in a spare room. :)

Recently, they built and moved into a new office. To say that it's beautiful is an understatement. I am in love with the new office. I have been helping them get organized in the new office. It's perfect because they could really use the help and I am getting out of the house. Staying busy is an important part of me staying happy and they all know that. When I am at the office, time passes by real fast. I believe that helping at the office is going to help me get through fall and winter.

Where it's a family business, I don't feel embarrassed because of my HD. I just feel like myself. I can also chose to go help when I want to. So if I'm having an off day, no big deal. I believe this new arrangement is going to work out perfect. I am already proud of myself for helping despite my HD.

Thank you Auntie Carol and Uncle Chris for allowing me to help out!
And of course, thanks to my Papa who followed his dreams a long long time ago and made this possible for all of us!

Thanks for following along as I share my journey,
Alexandra


Wednesday, September 10, 2014

Current Feelings

Good morning, 

I have really been enjoying the last few weeks of Summer :)

I have been helping my cousins wife Katie with her babies. It has been really great for both of us.

Also, I am not sure I have told you all about my new Wednesday night sister tradition- I have been going to visit her every Wednesday in Boston!! It's been amazing that she lives here and we get to hang out. I am going tonight!

Over Labor day weekend I went to Prudence Island and the Cape with my cousins! I went fishing for the first time in the ocean, and I caught and held a baby shark!! I have been living my summer with no fears!!!
Me and my god son and my niece in Prudence!

After the HDSA walk on Saturday, I took a ride with my parents, my sister, and her boyfriend to Cape Ann. It was quaint and beautiful. We went in some really cute stores!



I don't want my summer to end, but I have never been one to hate fall. I am just nervous that without my pool and beach days, will I  be happy? I can fight through it I have made it through every thing else. I still have the same people supporting me and spending time with me. Plus, I have a lot of things to look forward to; we have some day trips planned, I am going to Florida in October, and apple picking sometime this fall as a family :).

I have been beyond happy this summer because I am still able to do all the things I love. I'm so grateful for my current state and condition. I have been feeling good. Due to my HD I have no idea what next Summer holds. Does that scare me?? Without a doubt. But dwelling on it is no good. One thing my HD has taught me is to embrace the present--and this past summer, summer was amazing and one I'll never forget.

As always thanks for reading,
Alex 





Sunday, September 7, 2014

HDSA Team Hope Walk

Good  morning readers,

I had a really great day yesterday!


Yesterday was the 2014 HDSA Team hope walk. Right now there is no  cure for HD, and it is an awful disease. I walked for a cure yesterday! 


I saw my neurologist, and some others that I know in the HD community. I was so happy to see them!



I walked with 40 of my family members! They are all my biggest supporters. I appreciate all of them, and all that they do for me immensely. I love love each and every one of them!






Me, Melissa and Colin






Me Colin and Pay






Cousin love


 Me and Liz



Chris and me 







Family :)

Kim and Chris

Me and my biggest supporters






Sisters

mom, my Auntie Carol, me, and Liz 


It was a beyond perfect day! I can't express in words how much support I have been receiving from my family!

Thanks for reading as I share my HD journey,
Alex 





Monday, August 25, 2014

summer please do not end!

 I am so sad that it is almost Labor Day because I am not ready for my summer to end!  I am having the best summer, I have truly been happy!

I have been so many places this summer; Kansas to see my friends, Kentucky for the HDSA convention, Marco Island to see family friends, the cape, and Prudence Island. 

I have had countless pool and beach days with my family. 

I watched my cousin get married, had a surprise 24th birthday, became a godmother to baby James, and my sister moved here, went to a Red Sox game, and Zac Brown.

Although I am sad to see summer end, I am for ever grateful for all the memories it holds.  I will always remember the summer after I was diagnosed with HD as being the best one yet. I took full advantage over each aspect Summer has to offer. I don't know  how many more times I will
 get to experience all the things I did this summer due to my HD getting worse. 

But I also have so many things to look forward to in the
 fall; the Boston Team Hope walk,my friend Travis coming to see me, another Kansas trip, and a Florida trip.

But this summer will always always hold a special place in my heart.

As always thanks for reading,
Alexandra