11.28.2014

health update

Good morning!!

I'm going to update every one today on my neasous and vommitting  syptomns. In my last post I had said that I had a CT scan of my stomach as well as a colonoscopy and an endoscopy- all of those tests came back normal. You can read about that here


Even after my 9 days streak of not keeping anything down, I would be still throwing up once a day every couple day, and then I had a 9 day streak where I kept everything down and thought I was in the clear. On Tuesday I threw up 7 times, so when I was still throwing up Wednesday my mom and  I went to urgent care because I was feeling worse due to being dehydrated. I got two bags of fluids, and two differentr neasous meds, neither of the neasous meds worked. I tried to drink two sips of water and threw it up, so urgent care sent me to the hospital. 

At the hospital I got two more bags of fluids, and two other neasous meds, and once again nothing worked so I was admitted to the hospital on Wednesday night.

So I spent my thanksgiving in the hospital but it could have been worse. I have my own room and I'm so grateful for my hard working doctors and nurses who missed out on being with their own familes to be here with me. And I had my parents, step sister and her boyfriend my auntie Carol, uncle Jim, Auntie Kathy, and my cousin all visit. I received many  really sweet texts, and FaceTimeed with my niece Francesca. I also really appreciate my mom being here most of the day even though it was Thanksgiving. I deeply missed my family but I'm trying to stay positive about the situation. My sister is in Chicago for Thanksgiving but she keeps checking in on me.

So yesterday I had an ultrasound test and an x ray to check for any blockage and both tests came back normal. Today I have another test to see where my food is going and I have a gall bladder test. What I am hoping is that it is my gallbladder and that it has to be removed. I know that may sound crazy but I have had these syptomns for two months, and want an answer.

When will I be home?? Well I can't go home until I keep food and liquids down and if  my gall bladder has to be removed even longer. I would rather be here than at home, the fluids help me feel better we finally found a neasous med that worked, and the nurses take care of me, and my GI specialist are doing their best to give me an answer. I have just been thinking and praying for an answer.


If you could keep me in your thoughts and prayer this week I would greatly appreciate it. Thanks for reading - it was great to get my feelings out
Alex 

11.24.2014

My favorite family tradition-Sulmonte Family Sunday Breakfast


TGood morning readers- I hope all is well with you!

Today I'm going to share my favorite family tradition - for as long as I can remember Sunday morning means that all my huge crazy family comes to my Nana and Papas for breakfast. When I was growing up I remember playing with my cousins and that Sunday was my favorite day for that reason. We had the very best grandparents and loved nothing more than coming to see them. When I was about 10 my nana and papa moved to Florida and the tradition contiued in the Summer and around Thanksgiving and Christmas when they were home.

Today the tradition still stands and all my cousins are now bringing their spouses and kids to see their grandparents. We have a crazy number of people and I love nothing more.




This past Sunday was our first breakfast since my Nana and Papa had been home and it was amazing to see every one back together again. I had a lot of peaceful and perfect moments!

My family is my biggest supporters, encouragers, and advocates of my HD.  I love them for it!

Thanks for reading,
Alexandra 

11.16.2014

My weekly sister tradition

I have  been having a lot of sister time ever since my sister Elizabeth moved back here in June. It couldn't make me happier! She will come home for a weekend or I will go there. We started a weekly tradition in August and I have been going to see her every Wednesday  since then :) She lives in a quaint and beautiful neighborhood in Boston and there are many peaceful and perfect moments when I am there! Some of the things we have done together when I have gone is shopping, walks, drinks on the water, and dinner!!







I love love our tradition and that she lives so close and we can do it.  I look forward to Wednesday's and all of our time together!   I truly have the best sister and best friend ever. Her smile and personality light up a room-she is truly beautiful inside and out! she takes all the pressure off my mom and balances it out between them by being here- and she knows that- that's why she's here :) I am happy when I am with my sister and will never be able to thank her for moving her boyfriend and life from Chicago to here! I love love her! She was my first best friend. There is no question in my mind whether or not she truly gets and understands my HD struggle. She is my advocate and one of my biggest supporters! It was the push from her that started my blog, and she supported my Boston Globe article. This drive of mine to be an advocate of HD is all pushed from her.


Happy tears this morning.

As always thanks for reading and thanks to my sister,
Alex 

11.10.2014

Imperfect

One thing that my HD journey has taught me is that people will love you even if you aren't perfect. They will still love me imperfections and all. They knew and loved me before the HD which means they will still love me despite my HD. It was a long road to get there. In the beginning of my diagnosis, I struggled with feeling different than every one around me and I felt embarrassed.  

Now I realize that no one is the same, and everyone must feel different at some point. I am no longer embarrassed, and feel more confident in myself each day. I have realized that people love me before HD and people still love me after. I have learned to embrace my imperfections. 

I am encouraging you to embrace your imperfections. What is some thing you feel different about- embrace it!!


As always thanks for reading- this space is my safe haven,

Alexandra