Hope Hope Hope

The last time I saw Dr. Frank, my neurologist and HD Speciaist,  he said to me how long have you been coming to see me and I said a year and a half, and he told me that my HD was progressing very little since he first started seeing me. To say that made me feel amazing and happy is an understatement. I feel as if my disease is progressing slowly and there is so many things I am able to do.

This gives me so much hope for the research of treatments. After the convention my family and I have so much hope in a treatment that will stop the progression and restore what it has done to my brain in just a few years. I pray everyday for this and am witnessing a miracle. 

I have been letting myself believe that I will be what I was meant to be a mother, wife and a teacher. I'm letting myself think about baby names again. 

In the famous words of my sister at 28 I will be healthy, married and pregnant and 
look back on this journey as something that made me stronger.

I am going to continue to hope hope and hope some more. 


True Friends

I've realized as I grow up and get deeper into my HD journey, hard times reveal true friends. I have also realized that it's more important to have a few close true friends than a lot of fake friends.

I can't be worried about the people who can't understand my disease and be my friend and support me, I have to be able to let them go, no matter how hard it is and how much it hurts me.

I have the best and most supportive, truest friends who are willing to understand my disease, and still love me for me. The only hard thing is these people live in Kansas and I live in Boston but they are finagling a trip to come visit me in Labor Day and I will always love them for that.

My sister also reminded me that my family, my mom and sister and my extended family are my best friends and that's all I need here. I'm done fighting for more when I'm the only one fighting.  

To my truest friends from Kansas and to my family, you have my heart for all you do for me.


Huntingtons Disease Awareness Month: Family is Everything

May is HD awareness month! ��

The HDSA motto is family is everything because HD is a genetic disorder that affects families. In my family  8 out of 11 of my Dads siblings have the HD gene that their father also had.  Many cousins either have the gene, or are at risk. HD has put a huge weight on my family's shoulders. Even the ones who don't have the gene are affected when they have had to watch their father suffer and now siblings. We would not make it with out each other to lean on the hard days and to us family is everything.

My Grandma, the mother of eight kids with Huntingtons Disease, had a huge burden to handle, and she did it all with grace and faith. At least twice a week she was driving someo one into Boston for HD research, driving to Tewsbury to visit them in the HD Unit. As hard as it has been for my mom and Liz since I have also been diagnosed they can't fathom doing it eight times over. My family was recognized by the HDSA as family of the year and my Grandma was very deserving of that award. My Grandma has passed but her legacy lives on in my Aunt Mary. My Aunt is everyones advocate, she comes andgets me once a week, and my cousins visit. She tells me stories about our family, and we talk about HD research and our hope and faith for a cure. She keeps my faith alive, keeps me smiling, and I could cry thinking about what she means to me. My Aunt and Grandma are without a doubt HD saints.

 I would not have gotten through my diagnosis without my mom and sister.My sister has moved her whole life here from Chicago, and she has taken every Friday off of work in the summer to spend time with me. My mom reminds us to keep smiling even when it's hard and pray everyday for a cure. They both have my heart, are my best friends and I am happy when I am with them.

I have been raised to believe family comes first and family is everything and I without a doubt believe in it. When I was beginning to show signs of HD my mom moved us from our home of 15 year Kansas to Boston to be with her family, have them there to support us because family is everything to her, and we needed them to get through it.

As you can see to me family is without a doubt my everything.

If your a blog reader who has been touched by my story and your not sure what you can do.

1.Email me I would love love to hear from you
2. Tell my story to someone and help raise awareness 
3. Donate to the HDSA

 I have been smitten with sharing my journey in order to raise awareness for HD!

Thanks for reading,


Stella and Dot Mothers Day Gifts ������♥️��

Stella and Dot items can make the best gifts, especially Mothers Day Gifts! Choosing S&D as a gift is thoughtful and heartfelt.  ♥️

Here are some great gift ideas!!

Shop the Unique Boutique for a personalized gift! One great gift idea is to engrave the date of  the anniversary, and then add the birthstone or initial charm of kids and grandkids. Another idea is to engrave the initials of your mom and add memorable charms. There are many charms and engraveables to choose from so be creative!
 Another idea is the Capri Tunic  for Moms and Daughters ages 6-12. It is one size fits all!! Capri Tunic is a great beach cover up! �� $89 for Women and $59 for little girls!

Two more great ideas are the Love and Hope necklace each $39


An amazing gift idea is the Getaway Bag and my personal favorite bag! It has a zip out for extra storage!! ��♥️�� Getaway Bag is $138!!
last but not least there is the Keep it the bag. It's the diaper bag and comes with a changing pad!
It's on sale for $98!

My Stella and Dot Link is on the right side of my blog!! Check out the Mothers Day boutique for more  ideas!Place orders by 5/4 for them to arrive by mothers Day! Please contact me with questions- maryandalexiewels@gmail.com